Hans Scheurer, MSc, European Medicines Agency, Amsterdam, Netherlands and Myeloma Patients Europe, Brussels, Belgium, comments on the importance of involving patient groups in the development of clinical trials. Mr Scheurer explains that healthcare professionals should communicate with patients about the design of their study and ensure that it is tailored towards their preferences and unmet needs. This interview took place at the EBMT-EHA 4th European CAR T-cell Meeting which was held virtually in 2022.