The importance of multiple myeloma foundations and a patient story

Vivien de Gunzburg, Founder of the de Gunzburg Myeloma Research Foundation (DGMRF), discusses his multiple myeloma (MM) foundation with Paul Richardson, MD of the Dana-Farber Cancer Institute, Boston, MA. This video is part of a series of videos on Vivien de Gunzburg’s patient story and work in the field of MM; he was diagnosed with MM 13 years ago and Dr Richardson has been part of his care team. Vivien de Gunzburg explains why he decided to get involved and how he helped with the formation of the first French foundation dedicated to myeloma, the French Foundation for the Research on Myeloma and Gammopathies (FFRMG). He then talks about the work of the DGMRF to help Dr Richardson in the US and his aim to bring awareness to the disease. Dr Richardson discusses how various organizations, such as the International Myeloma Foundation (IMF) and Myeloma UK, have brought awareness and how collaborations have been key to drive forward drug approvals. De Gunzburg explains that they want to find a cure for MM and Dr Richardson explains the progress they have made so far.
Recorded at the 2016 World Congress on Controversies in Multiple Myeloma (COMy) in Paris, France.

DGMRF: http://www.gunzburg-myeloma.org/
Paul Richardson’s profile: http://www.dfhcc.harvard.edu/insider/member-detail/member/paul-g-richardson-md/

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