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EHA 2025 | Considering patient-reported fatigue in MDS: a novel prognostic index
Fabio Efficace, PhD, Italian Group for Adult Hematologic Diseases (GIMEMA), Rome, Italy, comments on the importance of incorporating patient-reported fatigue into the assessment of myelodysplastic syndrome (MDS) prognosis. Dr Efficace highlights the development of a novel index that considers patient-reported fatigue alongside traditional factors. This interview took place at the 30th Congress of the European Hematology Association (EHA) in Milan, Italy.
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Transcript
We historically have been assessed prognosis for patients with myelodysplastic syndrome with the IPSS score which is actually based on cytogenetics, bone marrow blasts and peripheral cytopenias. In this study we have included, in addition to these three important aspects, patient self-reported fatigue. So we have created an index which considers also patient-reported fatigue and externally validated this index in a different population than the original one and we’ve seen that actually it works, so it means that we need to assess fatigue at the diagnostic workup of this population, so it actually, this study emphasizes the central role of patients in providing their information about their quality of life...
We historically have been assessed prognosis for patients with myelodysplastic syndrome with the IPSS score which is actually based on cytogenetics, bone marrow blasts and peripheral cytopenias. In this study we have included, in addition to these three important aspects, patient self-reported fatigue. So we have created an index which considers also patient-reported fatigue and externally validated this index in a different population than the original one and we’ve seen that actually it works, so it means that we need to assess fatigue at the diagnostic workup of this population, so it actually, this study emphasizes the central role of patients in providing their information about their quality of life.
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