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ASH 2025 | The MPN Journal: a web-based platform developed by patients for patients
Ruben Mesa, MD, Levine Cancer Institute, Atrium Health Wake Forest Baptist Comprehensive Cancer Center, Winston-Salem, NC, briefly introduces the MPN Journal, a web-based platform developed by patients with myeloproliferative neoplasms (MPNs) for patients to enable effective tracking of disease-related parameters. This tool aims to empower patients in managing their disease, facilitate patients and healthcare providers in identifying and addressing opportunities to reduce symptom burden, and enhance communication between patients and their healthcare teams. This interview took place at the 67th ASH Annual Meeting and Exposition, held in Orlando, FL.
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Transcript
Very excited to have data presented regarding the MPN Journal. This has really been a project driven by MPN patients, for MPN patients. I’ve been helpful to really be a collaborator in those efforts, but led in particular by John Hoogland from Europe, as well as Peter Loffelhardt. The idea was really to create a platform for patients to be able to enter in their information, to track it, to be able to share that information with their healthcare providing team and to potentially learn from that information...
Very excited to have data presented regarding the MPN Journal. This has really been a project driven by MPN patients, for MPN patients. I’ve been helpful to really be a collaborator in those efforts, but led in particular by John Hoogland from Europe, as well as Peter Loffelhardt. The idea was really to create a platform for patients to be able to enter in their information, to track it, to be able to share that information with their healthcare providing team and to potentially learn from that information. So what we’re presenting here at ASH is really the process that’s undergone to really develop this process. Patients are being actively enrolled, going to be sharing some of their preliminary observations from that, but again finding ways to really empower patients to really be able to track their disease in a way that helps them communicate with their healthcare teams.
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