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ASCAT 2024 | Improving the patient experience for those with SCD who suffer from acute pain
Sanne Lugthart, MD, PhD, University Hospitals of Bristol and Weston NHS Foundation Trust, Bristol, UK, discusses the need to improve the patient experience for patients with sickle cell disease (SCD) experiencing acute pain crises. Dr Lugthart emphasizes the importance of addressing delays in care during hospital visits, highlighting that prompt administration of pain relief following an individualized pain plan improves the outcomes of patients. This interview took place at the 19th Annual Scientific Conference of the Academy for Sickle Cell and Thalassaemia (ASCAT 2024) in London, UK.
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Transcript
I think the outcome we want to improve more is the patient experience. What we’re hearing from patients is that when they attend the hospital, that there’s sometimes a delay in pain relief, and that’s something we’ve tried to improve for many, many years. The individual pain plans are one way to do that. There are definitely also, for example, other pathways like ambulance services, if they have access to that pain plan they can already start the pain relief while the patient is in the ambulance...
I think the outcome we want to improve more is the patient experience. What we’re hearing from patients is that when they attend the hospital, that there’s sometimes a delay in pain relief, and that’s something we’ve tried to improve for many, many years. The individual pain plans are one way to do that. There are definitely also, for example, other pathways like ambulance services, if they have access to that pain plan they can already start the pain relief while the patient is in the ambulance. Overall I would say it still needs our attention and I think a part of this is also about educating your staff, bypassing the ED or giving patients in pain priority to be seen earlier so that the pain is treated accordingly and urgently. Patient feedback is that the sooner you treat the pain the more likely is that the crisis will kind of turn around and obviously the patient doesn’t want to be admitted in the hospital they would like to go home if they can.
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Disclosures
Pfizer, Sanius Health, Vertex.
