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IPIG 2025 | Challenges in the diagnosis and treatment of PNH in Eastern Europe
In this video, Jaroslav Čermák, MD, Institute of Hematology and Blood Transfusion (ÚHKT), Prague, Czechia, discusses key barriers to effective diagnosis and treatment of paroxysmal nocturnal hemoglobinuria (PNH) in Central and Eastern Europe. He highlights two significant challenges: the high cost of treatment and limited awareness of the disease among healthcare professionals. Dr Čermák explains how targeted educational efforts for hematologists, hepatologists, angiologists, and general practitioners are improving diagnosis and care for patients. This interview took place at the 2nd International PNH Interest Group (IPIG) Conference in Paris, France.
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Transcript
You know, it’s a little bit complicated in Central and Eastern Europe. I think there are two basic reasons for that. One reason is an economic reason, because this medication is not so cheap, it’s expensive, and there are problems in all countries to get enough money for the drugs. And there is a second problem which is probably more important for us and we can do something for the patients, and that is knowledge about PNH...
You know, it’s a little bit complicated in Central and Eastern Europe. I think there are two basic reasons for that. One reason is an economic reason, because this medication is not so cheap, it’s expensive, and there are problems in all countries to get enough money for the drugs. And there is a second problem which is probably more important for us and we can do something for the patients, and that is knowledge about PNH. You know we are trying to do a lot of work. We had repeated lectures for the physicians, for the hematologists and it improved the situation. Now we are continuing with the education of some other professions, that means hematologists and not only hematologists but also hepatologists and angiologists and also the general practitioners, because not all the patients are diagnosed early and some of them are misdiagnosed or are not diagnosed at all. So it brings some problems for the patients.
This transcript is AI-generated. While we strive for accuracy, please verify this copy with the video.
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