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ICML 2025 | Insights into the Global Lymphoma Registry Alliance
Eliza Hawkes, MBBS Hons, FRACP, DMedSc, Olivia Newton-John Cancer Research Institute at Austin Health, Melbourne, Australia, comments on the launch of the Global Lymphoma Registry Alliance, a collaborative effort of over 60 registries from 32 countries, that aims to harmonize data and share insights on governance and patient advocacy to improve care for patients. This interview took place during the 18th International Conference on Malignant Lymphoma (18-ICML) in Lugano, Switzerland.
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Transcript
Yes, so we have started an exciting new initiative called the Global Lymphoma Registry Alliance, or GLRA, and this is over 60 registries from 32 countries around the world. And we are bringing this group together to harmonize data between the registries, share insights into the governance and we also are very excited to say that the GLRA has partnered with the Lymphoma Coalition, a patient advocacy network, in order to ensure that any of our designs or collaborations do have that strong patient voice and so we are growing every day and we are doing some data mapping to make sure that we know what the common fields in all these registries are and also the gaps and we are in the process of formulating a roadmap for this group and also what we want for registries because real-world data is increasingly important in all the rare subtypes of lymphoma and with the rapid rise in new treatments and really vast discrepancies in access to care around the world and if we map that and work together to understand what’s happening in clinical care that will result in definitive improvements in treatment and care for lymphoma patients around the world...
Yes, so we have started an exciting new initiative called the Global Lymphoma Registry Alliance, or GLRA, and this is over 60 registries from 32 countries around the world. And we are bringing this group together to harmonize data between the registries, share insights into the governance and we also are very excited to say that the GLRA has partnered with the Lymphoma Coalition, a patient advocacy network, in order to ensure that any of our designs or collaborations do have that strong patient voice and so we are growing every day and we are doing some data mapping to make sure that we know what the common fields in all these registries are and also the gaps and we are in the process of formulating a roadmap for this group and also what we want for registries because real-world data is increasingly important in all the rare subtypes of lymphoma and with the rapid rise in new treatments and really vast discrepancies in access to care around the world and if we map that and work together to understand what’s happening in clinical care that will result in definitive improvements in treatment and care for lymphoma patients around the world. So watch this space.
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