The Community Focus Channel on VJHemOnc is an independent medical education platform, supported with funding from Johnson & Johnson (Gold). Supporters have no influence on the production of content. The levels of sponsorship listed are reflective of the amount of funding given.
General Updates | Integrating non-pharmacological approaches into the management of patients with sickle cell disease
Samah Babiker, MBBS, MRCP-UK, FRCPath, Evelina London Children’s Hospital, London, UK, discusses the importance of non-pharmacological interventions in improving the outcomes and quality of life for patients with sickle cell disease (SCD), highlighting the need for psychosocial support, community support, and lifestyle advice. Dr Babiker also emphasizes the importance of empowering patients with education and knowledge about their condition, enabling them to become experts in their own health needs and advocate for themselves. This interview took place virtually.
These works are owned by Magdalen Medical Publishing (MMP) and are protected by copyright laws and treaties around the world. All rights are reserved.
Transcript
Non-pharmacological approaches are, of course, integral parts of management of any chronic health condition, including sickle cell disease. So we always think about psychosocial support, addressing any mental health concerns, and providing psychological support as part of a sickle cell clinic. I know this may not be achievable everywhere, but I think we should aspire to have psychological support in every clinic that looks after chronic health conditions...
Non-pharmacological approaches are, of course, integral parts of management of any chronic health condition, including sickle cell disease. So we always think about psychosocial support, addressing any mental health concerns, and providing psychological support as part of a sickle cell clinic. I know this may not be achievable everywhere, but I think we should aspire to have psychological support in every clinic that looks after chronic health conditions. And then including also some community support. For example, some patients need help with their finances and others need help with employment support letters. Or even for children, we need to make sure we have school care plans that explain to teachers that look after these children what sickle cell disease is, what we could do if they aren’t well, and who to contact, essentially. And I think lifestyle advice is quite important. Encouraging people to have regular exercise, have a healthy, balanced diet, ensure that they are keeping up with their adequate hydration, that’s an integral part, again, of sickle cell disease management. And offering and empowering these patients with good education, good learning about their own conditions. Again, making sure that they become experts in their own health needs so that they can advocate for themselves.
This transcript is AI-generated. While we strive for accuracy, please verify this copy with the video.
Read more...
