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BSH 2017 | Collecting real world data from novel treatments

George Follows, MA, BM, BCh, PhD, FRCP, FRCPath from Cambridge University Hospitals NHS Foundation Trust, Cambridge, UK discusses real world data collection at the 2017 British Society for Hematology (BSH) Annual Scientific Meeting in Brighton, UK. The UK is comparatively poor in collecting data from patients being prescribed novel treatments outside of clinical trials. Physicians are busy, and collecting patient data is not a priority. A potential is solution is apps for patients to update their symptoms, which will hopefully produce good quality data, as patients have a vested interest. A drawback, however, is reaching the elderly. He states that more work needs to be done, but that this is a promising area worth exploring. This video has been supported by Napp Pharmaceuticals Ltd through an unrestricted educational grant to Magdalen Medical Publishing.